Regional Syndromic Surveillance Data Sharing Workshop: HHS Region 2+

A planning team that included staff from ISDS, ASTHO, and Charlie Ishikawa of Ishikawa Associates, LLC created and implemented the HHS Region 2+ workshop. Charlie led the workshop facilitation and design of workshop artifacts. The workshop was based on a model that utilizes a non-formal education (NFE) approach2, which features self-directed learning and peer-to-peer problem solving, and actively engages participants in identifying their learning needs and methods with guidance by a facilitator.

August 28, 2017

Community Engagement among the BioSense 2.0 User Group

BioSense 2.0 has become a platform for technical receipt and analysis of syndromic surveillance data for many jurisdictions nationwide, as well as a collaborative effort that has engaged a larger community of syndromic surveillance practitioners, Governance Group, and federal agencies and organizations. The potential longterm benefits of BioSense 2.0 for resource and data sharing have at times been overshadowed by the short-term limitations of the system and disconnected efforts among the CoP.

October 10, 2017

Localized Surveillance: A Fresh Perspective for Regional Syndromic Surveillance

Recent efforts to share syndromic surveillance data have focused on developing national systems, namely BioSense 2.01 . The problems with creating and implementing national systems, such as legal issues, difficulties in standardizing syndrome definitions, data quality, and different objectives, are well documented. In contrast, several local health departments have successfully shared data and analyses with each other, primarily during emergency events.

November 02, 2017

Regional Syndromic Surveillance Data Sharing Workshop: HHS Region 10

The HHS Region 10 workshop engaged nine participants from state and local public health departments in Idaho, Oregon, and Washington with experience in syndromic surveillance that ranged from less than 1 year to over 10 years. Representatives from Alaska, which is also in HHS Region 10, were unable to participate. Because the participants did not have access to actual emergency department (ED) syndromic surveillance data for sharing, the focus of the workshop was on building inter- jurisdictional understanding and sharing of practices.

Learning Objectives

March 14, 2017

Check! Explore barriers and solutions to data sharing to BioSense 2.0

The benefits of inter-jurisdictional data sharing have been touted as a hallmark of BioSense 2.0, a cloud-based computing platform for syndromic surveillance. A key feature of the BioSense 2.0 platform is the ability to share data across jurisdictions with a standardized interface. Jurisdictions can easily share their data with others by selecting data sharing partners from a list of participating jurisdictions.

October 31, 2017

Data De-Identification Toolkit

Developing effective data-driven algorithms and visualizations for disease surveillance hinges on the ability to provide application developers with realistic data. However, the sensitivity of the data creates a barrier to its distribution. We have created a tool that assists data providers with de-identifying their data in preparation for sharing. The functions in the tool help data providers comply with the HIPAA 'Safe Harbor' de-identification standard by removing or obscuring information such as names, geographic locations, and identifying numbers.


August 22, 2018

Check! Explore Barriers and Solutions to Data Sharing on BioSense 2.0

Inter-jurisdictional data sharing can enhance disease surveillance capabilities for local, state, regional and national public health situational awareness and response. BioSense 2.0, a cloud-based computing platform for syndromic surveillance, provides participating local, state and federal health jurisdictions with the ability to share aggregated data; a functionality that is easily activated by selecting an administrative checkbox within the BioSense application. Checking the data-sharing box, however, is a considerable decision that comes with benefits and consequences.

August 22, 2018

Crafting Inter-Jurisdictional Data Exchange Agreements

Health information increasingly needs to flow beyond the jurisdiction in which it was originally collected. As both people and microbes move across jurisdictional boundaries with increasing speed and ease, so too must health information. With an increased focus on privacy and security regulations comes an increased level of caution and formality related to data exchange between organizations, thus increasing the use of data exchange/data use agreements to establish clear parameters for exchange.

September 25, 2017

Guidelines for Navigating Human Subjects Review and Preparing Data Sets for Sharing with the ISDS Technical Conventions Committee

Collaborative relationships between academicians and public health practitioners are necessary to ensure that methodologies created in the research setting translate into practice. One barrier to forging these collaborations is restrictions on the sharing and availability of public health surveillance data; therefore, most academics with expertise in method development cannot access 'real world' surveillance data with which to evaluate their approaches.

April 28, 2019

Syndromic Surveillance Regional Data Sharing Workshop: HHS Region 5

Thirteen surveillance professionals from seven state and local public health agencies in the U.S. Department of Health and Human Service (HHS) Region 5 planned and participated in the 2-day Workshop. The participants selected data sharing for heatrelated illness surveillance using BioSense 2.0 as a use case to focus Workshop activities and discussions.

August 28, 2017


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