There are currently over 25 installations of ESSENCE across the US. Among these, there are 3 instances of multi-jurisdictional implementations. These include a centralized regional system in the National Capital Region for MD, DC, and VA, a Missouri system that includes hospitals and users from the St. Louis area in Illinois, and soon the National Syndrome Surveillance Program (NSSP) version of ESSENCE which will centralize data from many jurisdictions. While each of these systems provides valid ways to share data across jurisdictions, they require data to be sent to another jurisdiction. There are some jurisdictions which have legal or philosophical or technical issues with these types of data sharing arrangements. Programs like Distribute attempted to solve this by only sharing pre-aggregated data. This caused issues though for surveillance of new and emerging issues that requires a more ad-hoc query capability. This gap can be filled with a locally-ran system that has the ability to perform queries into remote systems and perform a federated query across other jurisdictions.
Objective
The objective of this presentation is to describe the new federated query capability in ESSENCE and describe how this could affect public health practice in the future. Specifically, this presentation will describe how a federated set of disease surveillance systems across the country could help improve national disease surveillance situational awareness along with its potential to connect non-ESSENCE systems in the future for even more complete coverage. It will also describe how this capability is different than other data sharing projects that attempt to centralize data, but how there is room for both to benefit from each other.