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Stakeholder Engagement

Description

Given the periodic nature of influenza activity, it is important to develop visualization tools that enable enhanced decision-making. User-Centered Design is a set of software development methodologies that primarily employ user needs to develop applications. Similarly, Usability Heuristics provide a set of rules that increase the performance of user interfaces, and ease of use. We combined some of these techniques to develop FluView Interactive, a prototype that will enable users to better understand influenza information.

 

Objective

The objective of this study is to report on the use of User-Centered Design and Usability Heuristics to improve visualization of influenza-related information at the national level. The intention of the prototype is to make data more accessible to different stakeholders including the general public, public health officials at the local and state level, and other experts.

Submitted by hparton on
Description

Funded by the Army’s Telemedicine and Advanced Technology Research Center, we developed the BioSINE toolset to provide visualization and collaboration capabilities to improve the accessibility and utility of health surveillance data. Investigation of public health (PH) practitioners’ needs with cognitive engineering methods revealed two key objectives: 

1. To provide analysts and decision makers with an intuitive, visually driven workspace. 

2. To support a web presence to provide rapid updating and facilitate greater interaction with data analysis in the PH community.

To better serve under-resourced PH organizations, both domestic and abroad, it is necessary to minimize information technology requirements and expertise in complex analytic tools.

BioSINE provides decision makers with the ability to create customized visualizations, focus on specific aspects of the data, or conduct hypothesis testing. Users can also view or hide variables, specify data ranges, and filter data relevant to their interests. Figure 1 shows a display in which a user investigated seasonal effects by narrowing the analysis to the summer months. Intuitive filtering is a key characteristic of the application to quickly produce snapshots of local interests.

 

Objective

BioSINE strives to improve situational awareness by making data visualization and collaboration capabilities intuitive and readily available for a wide range of PH stakeholders.

Submitted by hparton on
Description

The BioSense program’s mission is to support and improve public health surveillance infrastructure and human capacity required to monitor (with minimal lag) critical population health indicators of the scope and severity of acute health threats to the public health; and support national, state, and local responses to those threats. This mission is consistent with the 2006 Pandemic All Hazards Preparedness Act, and 2007 Homeland Security Presidential Directive (HSPD-21), both of which call for regional and nationwide public health situational awareness, through an interoperable network of systems, built on existing state and local situational awareness capability.

 

Objective

The objective of this study is that the Centers for Disease Control and Prevention will update the International Society for Disease Surveillance community on the latest activities for the BioSense program redesign (Centers for Disease Control and Prevention, USA).

Referenced File
Submitted by hparton on
Description

Secure and confidential exchange of information is the cornerstone of public health practice. Often, this exchange has to occur between public health agencies across jurisdictions. Examples include notification of reportable diseases when the testing and residence of the patient are in different counties. The cross-jurisdictional issues become exaggerated in times of communicable disease outbreaks or events of interest that are not yet classified as outbreaks. Currently, such communication occurs between state and local agencies and between agencies and community clinicians on a personal level, with phone, fax and snail mail. There are a multitude of secured websites hosted by the Utah Department of Health (UDOH) that offer access to single applications requiring approved users to remember multiple sites and logins/passwords. The goal of this project was to develop a centralized, single sign-on secure web portal, from which users could access multiple applications and communicate securely with each other.

 

Objective

There is an urgent need for improved communication between stakeholders involved in outbreak investigations, public health reporting and events of interest occurring between different jurisdictions within the same state. Currently, state and local public health agency personnel rely on personal communications involving phone, fax and snail mail. UDOH sought to develop and encourage the use of a secured web portal that allows access to a variety of applications using a single sign-on. This was achieved by developing a secured communications framework called PHAccess that allows tools and applications to be implemented within a secure web environment, using open source software and Agile methodology techniques. The user-centric design currently hosts an electronic report-staging area, ELR/EMR reporting, webbased reporting, secure messaging between stakeholders and a state laboratory result look-up feature. Currently, there are over 700 registered users; 3693 secure messages that have been exchanged and the site has been accessed over 12,205 times since January 2009. Informal feedback from users has been encouraging and formal evaluation is planned, along with expansion and integration with state level health information exchange projects. 

Submitted by hparton on
Description

Although the advent of the ONCs "meaningful use" criteria has added significant new incentives for healthcare organizations to provide the necessary data for implementing syndromic surveillance, incentives alone are not sufficient to sustain a robust community of practice that engages public health and healthcare practitioners working together to fully achieve meaningful use objectives. The process for building a successful community of practice around syndromic surveillance is primarily application-agnostic. The business process has many of the same characteristics regardless of application features, and can be incrementally customized for each community based on the unique needs and opportunities and the functional characteristics of the application. This presentation will explore lessons-learned in the north central Texas region with BioSense 1 and ESSENCE over the past six years, and will describe the multi-phase process currently underway for BioSense 2.0. Key program process steps and success criteria for public health and healthcare practitioners will be described. This road map will enable other local health department jurisdictions to replicate proven methodologies in their own communities. The presentation will also highlight what it takes for an existing community of practice with a home grown system to move processes and protocols to the cloud.

 

Objective

To explore the lessons learned from the Advanced Practice Center methodology regarding the implementation of syndromic surveillance while considering what it takes to create, enhance, and sustain relationships between hospitals, public health practitioners, and the community.

Submitted by elamb on
Description

The Oregon Health Authority (OHA), in collaboration with the Johns Hopkins University Applied Physics Laboratory, implemented a syndromic surveillance system, Oregon ESSENCE. A critical component to developing and growing this statewide system is obtaining buy-in and voluntary participation from hospital Emergency Departments (EDs). This process involves approval at multiple levels within a hospital facility from administration to information technology staff responsible for sending electronic ED data to the Oregon ESSENCE system. Therefore, developing marketing materials that appeal to a wide range of recruitment audiences is a key step in obtaining stakeholder buy-in. OHA adopted the ISDS and CDC syndromic surveillance standards for the public health objective of the Center for Medicaid and Medicare Services (CMS) Meaningful Use Programs. However, Oregon hospitals will not receive financial incentive to participate in Oregon ESSENCE from CMS until 2014 during stage two of Meaningful Use. Consequently, this project's early years will focus on obtaining voluntary participation from hospitals.

 

Objective

Encourage hospitals to participate in OHA emergency department syndromic surveillance system, Oregon ESSENCE.

Submitted by elamb on
Description

In the summer of 2001, New Jersey (NJ) was in the process of developing surveillance activities for bioterrorism. On September 11, 2001, the U.S. suffered a major terrorist attack. Approximately a month later, Anthrax-laced letters were processed through a New Jersey Postal Distribution Center (PDC). As a result of these events, the state instituted simplistic surveillance activities in emergency departments (ED's). Over time, this initial system has developed into a broader, more streamlined approach to surveillance that now includes syndromic data e.g., Influenza-like illness (ILI) as well as the use of technology (automated surveys, real-time data connections, and alert analysis) to achieve surveillance goals and provide daily information to public health partners in local health departments and DHSS response colleagues.

Objective

To describe the improvements in New Jersey's Emergency Department surveillance system over time.

Submitted by elamb on
Description

In 2003, the need for a system to track and manage patient status and location was identified by Boston Emergency Medical Services (Boston EMS) and the Conference of Boston Teaching Hospitals. After consultation with EMS (municipal, fire based, and private), hospital, local and state public health and emergency management stakeholders, a core group from Boston EMS and Boston Public Health Commission (BPHC) developed guidelines for a Metro Boston Patient Tracking System. The goal was to provide a system to reunite family members and serve as a tool for managing short term/high impact mass casualty incidents and protracted disease outbreaks.

Since 2004, BPHC Communicable Disease Control Division (CDC) has effectively managed several mass prophylaxis clinics in response to infectious disease outbreaks. However patient data was largely collected on paper based forms, limiting the availability of real-time clinic data to incident command. To address these challenges BPHC CDC began meeting with Boston EMS to define the business processes and information needs during public health emergencies.

 

Objective

To describe the electronic patient tracking system configured by Boston EMS and the BPHC CDC to address information needs during public health emergencies.

Submitted by elamb on
Description

The former Soviet Union (FSU)—through the Sanitary-Epidemiologic Service (SES)—developed an extensive system of disease surveillance that was effective, yet centrally planned in Moscow. Even after the fall of the FSU in 1991, most newly independent states maintained all or parts of the SES structure. However, even 15 years later, the loss of economic and technical assistance from Moscow has negatively impacted the effectiveness and efficiency of disease surveillance in these republics, including Armenia and Georgia. In 2005, Armenia and Georgia reported tuberculosis (TB) incidences of 71 and 83, respectively, per 100,000.

 

Objective

To enhance its effectiveness and efficiency, we evaluated TB surveillance in the FSU Republics of Armenia and Georgia.

Submitted by elamb on
Description

For more than a decade, biosurveillance systems (and more recently BioSense) have been employed in the United States. Efforts to drastically expand these surveillance capacities have been a national priority given concerns about national security. However, there has been little emphasis on value or increasing value to communities or agencies contributing and analyzing data. This qualitative analysis focused on all biosurveillance stakeholders and the opportunity to enhance interoperability and reuse of data and systems.

 

Objective

To understand the perspective of biosurveillance stakeholders and how their participation creates value for them as well as public health departments.

Submitted by elamb on