Enhancing Provider Reporting of Notifiable Diseases using HIE-enabled Decision Support

Traditionally, public health agencies (PHAs) wait for hospital, laboratory or clinic staff to initiate case reports. However, this passive approach is burdensome for reporters and produces incomplete and delayed reports, which can hinder assessment of disease in the community and potentially delay recognition of patterns and outbreaks. Modern surveillance practice is shifting toward greater use of electronically transmitted disease information.

June 18, 2019

Advanced Visualization and Analysis of Data Quality for Syndromic Surveillance Systems

Effective clinical and public health practice in the twenty-first century requires access to data from an increasing array of information systems. However, the quality of data in these systems can be poor or “unfit for use.” Therefore measuring and monitoring data quality is an essential activity for clinical and public health professionals as well as researchers. Current methods for examining data quality largely rely on manual queries and processes conducted by epidemiologists. Better, automated tools for examining data quality are desired by the surveillance community.

January 21, 2018

Surveillance of Stillbirth and Syphilis Screening Using Electronic Health Records

Reports of infants born with congenital syphilis have increased in the United States every year since 2012. Prevention depends on high performing surveillance systems and compliance with the U.S. Centers for Disease Control and Prevention (CDC) recommendations to perform syphilis testing early in pregnancy, in the third trimester and at delivery if a woman is at high risk, and following a stillbirth delivery. These guidelines exist, because untreated syphilis is associated with adverse fetal outcomes including central nervous system infection and death.

January 21, 2018

Using Electronic Health Records for Public Health Hypertension Surveillance

Hypertension (HTN) is a highly prevalent chronic condition and strongly associated with morbidity and mortality. HTN is amenable to prevention and control through public and population health programs and policies. Therefore, public and population health programs require accurate, stable estimates of disease prevalence, and estimating HTN prevalence at the community-level is acutely important for timely detection, intervention, and effective evaluation. Current surveillance methods for HTN rely upon community-based surveys, such as the BRFSS.

January 25, 2018

Exploring Research Opportunities Among the U.S. Census Bureau and Health Information Exchanges

On April 20, 2017, the U.S. Census Bureau hosted a meeting with approximately 20 representatives from the health data community. Attendees included representatives from health information exchanges (HIEs), state and local public health departments, health data associations, and the Department of Health & Human Services (see Appendix A for list of participants). The purpose of the meeting was to explore the potential for a joint Census-HIE initiative: specifically, data maintained at the Census Bureau would be matched to records maintained by HIEs.

May 30, 2017

Using Health Information Exchange to Improve Use of Prescription Monitoring Data

Washington State experienced a five-fold increase in deaths from unintentional drug overdoses between 1998 and 2014. The PMP collects data on controlled substances prescribed to patients and makes the data available to healthcare providers, giving providers another tool for patient care and safety. Optimal impact for the program depends on providers regularly accessing the information to review patients’ dispensing history.

March 14, 2017

An Informatics Framework to Support Surveillance System Interoperability in Minnesota

The Minnesota Department of Health (MDH) needs to be able to collect, use, and share clinical, individual-level health data electronically in secure and standardized ways in order to optimize surveillance capabilities, support public health goals, and ensure proper follow-up and action to public health threats.

May 26, 2017

Importance of Continued Data Quality Assessment of Syndromic Production Data

Once a facility meets data quality standards and is approved for production, an assumption is made that the quality of data received remains at the same level. When looking at production data quality reports from various states generated using a SAS data quality program, a need for production data quality assessment was identified. By implementing a periodic data quality update on all production facilities, data quality has improved for production data as a whole and for individual facility data.

July 06, 2017

Mapping Laboratory Reports to Illinois’ Extensively Drug-Resistant Organism Registry

CRE are drug-resistant bacteria that have a mortality rate of up to 50% in those infected. Several clusters of CRE have been detected in Illinois, often in long-term acute care hospitals. In response, Illinois created the XDRO registry, a mandatory reporting system designed to aid inter-facility communication concerning CRE.

July 16, 2017

NEDSS Base System (NBS): Electronic Data Exchange and Workflow Decision Support

The NBS is an integrated disease surveillance system deployed in 22 public health jurisdictions to support receipt, investigation, analysis and reporting, and data exchange for state reportable conditions. The NBS is governed by the Centers for Disease Control and Prevention (CDC) and state, local, and territorial users that make up the NBS Community. In the early 2000’s, electronic laboratory results reporting (ELR) was implemented in an effort to improve timeliness and completeness of disease reporting.

July 17, 2017

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