Localized Surveillance: A Fresh Perspective for Regional Syndromic Surveillance

Recent efforts to share syndromic surveillance data have focused on developing national systems, namely BioSense 2.01 . The problems with creating and implementing national systems, such as legal issues, difficulties in standardizing syndrome definitions, data quality, and different objectives, are well documented. In contrast, several local health departments have successfully shared data and analyses with each other, primarily during emergency events.

November 02, 2017

Tracking Communicable Disease Electronic Laboratory Data in New York State

All positive laboratory tests of reportable conditions on persons residing in New York State (NYS) are mandated to be sent to the NYS Department of Health (NYSDOH) via ECLRS. NYS, excluding New York City (NYC), receives over 100,000 ECLRS messages on general communicable diseases (CD) and hepatitis (HEP), not including Lyme disease and Influenza, annually. Although ECLRS is integrated with CDESS, the local health departments (LHD) need to review each lab report for proper initiation of a case investigation.

November 06, 2017

Leveraging the Master Patient Index in Public Health Surveillance through Collaboration between Illinois Department of Public Health and the Illinois Health Information Exchange

Meaningful Use (MU) Stage 2 public health reporting for Eligible Professionals (EPs) included a menu option for ambulatory syndromic surveillance. Review of currently existing models lead to a collaboration between the Illinois Health Information Exchange (ILHIE) and IDPH to build services that would support the use of the MPI, a database that can uniquely match records across systems.

November 02, 2017

Regional Syndromic Surveillance Data Sharing Workshop: HHS Region 10

The HHS Region 10 workshop engaged nine participants from state and local public health departments in Idaho, Oregon, and Washington with experience in syndromic surveillance that ranged from less than 1 year to over 10 years. Representatives from Alaska, which is also in HHS Region 10, were unable to participate. Because the participants did not have access to actual emergency department (ED) syndromic surveillance data for sharing, the focus of the workshop was on building inter- jurisdictional understanding and sharing of practices.

Learning Objectives

March 14, 2017

Regional Syndromic Surveillance Data Sharing Workshop: HHS Region 1

Surveillance professionals from six states and one local public health agency in the U.S. Department of Health and Human Services (HHS) Region 1 planned and attended the 2-day Workshop. Workshop attendees elected to explore how data sharing can support influenza-like illness (ILI) surveillance between regional jurisdictions, and the core activity on Day 1 focused on that purpose. 

Learning Objectives:

March 14, 2017

Arizona Review of Reported Binational Cases with Mexico

Reporting of binational cases has been enacted in Arizona systematically since 2007. Investigating binational cases and providing binational counterparts with timely information can help to enact interventions, as well as strengthens communication between binational, federal, and local health partners. This has allowed a better understanding of the burden of disease among binational/border populations. The process of systematically sharing these cases has allowed for appropriate and timely public health interventions to be implemented, crossing an international boundary in both states.

August 22, 2018

Data De-Identification Toolkit

Developing effective data-driven algorithms and visualizations for disease surveillance hinges on the ability to provide application developers with realistic data. However, the sensitivity of the data creates a barrier to its distribution. We have created a tool that assists data providers with de-identifying their data in preparation for sharing. The functions in the tool help data providers comply with the HIPAA 'Safe Harbor' de-identification standard by removing or obscuring information such as names, geographic locations, and identifying numbers.


August 22, 2018

Crafting Inter-Jurisdictional Data Exchange Agreements

Health information increasingly needs to flow beyond the jurisdiction in which it was originally collected. As both people and microbes move across jurisdictional boundaries with increasing speed and ease, so too must health information. With an increased focus on privacy and security regulations comes an increased level of caution and formality related to data exchange between organizations, thus increasing the use of data exchange/data use agreements to establish clear parameters for exchange.

September 25, 2017

Using Social Media for Biosurveillance: Gap between Research and Action

There is a significant body of literature on the use of social media for monitoring ailments such as influenza-like illness1 and cholera,2 as well as public opinions on topics such as vaccination.3 In general, these studies have shown that social media correlates well with official data sources,1,2,3 with the trends identifiable before official data are available.2 However, less is known about the impact of integrating social media into public health practice, and resulting interventions.

May 02, 2019

Guidelines for Navigating Human Subjects Review and Preparing Data Sets for Sharing with the ISDS Technical Conventions Committee

Collaborative relationships between academicians and public health practitioners are necessary to ensure that methodologies created in the research setting translate into practice. One barrier to forging these collaborations is restrictions on the sharing and availability of public health surveillance data; therefore, most academics with expertise in method development cannot access 'real world' surveillance data with which to evaluate their approaches.

April 28, 2019


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