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Ensuring confidentiality and safety of cancer registry data in Kumasi, Ghana

Description

Cancer registration involves collecting information on patients with cancer. Population-based cancer registries in particular are useful in estimating the disease burden and to inform the institution of prevention and control measures. Collecting personal information on patients with cancer requires strict adherence to principles of confidentiality to ensure the safety of the collected data. Failure may have legal and medical implications. The Kumasi Cancer Registry was established as a population-based cancer Registry in 2012. The registry collects data on cases of cancer occurring among residents of the Kumasi Metropolitan area of Ghana. Issues bordering on confidentiality were an integral part of the establishment of the registry. We discuss the implementation of confidentiality plans during the four years of existence of the Kumasi Cancer Registry.

Objective

To discuss the implementation of confidentiality practices at the Kumasi Cancer Registry.

Submitted by teresa.hamby@d… on